Monday was a slightly better day than the previous 3 days, I was able to stay awake all day, and could read or knit in 15 minute increments or so and I could actually pay attention to a TV show long enough to follow a plot.
I was up early enough to keep my morning routine and feed the Toothless Wonder Cat prior to the 8 AM start of the Tournament of Roses Parade start time. I did watch the parade and was actually able to watch most of it without my mind wandering too much.
Several people texted me Happy New Year and queried how I was doing. Their words of encouragement were greatly appreciated as despite the slight improvement, I am still finding my inability to control my brain frustrating.
Tomorrow I have to get my blood draw and we’re planning on doing some grocery shopping after. I also have an acupuncture appointment later in the morning and need to stop at Costco to pick up new refills on the Rx’s. I start the steroids tomorrow night in preparation for Wednesday’s treatment. Wonder how that will improve my ability to concentrate? Knowing what is coming is not easy and I am doing everything I can to NOT think about the sleepy, mind jumping frustration and boredom that is coming.
Life is ignoring the coming side effects
Oh man…this just sucks big time. I love the way you write and thank you for being so honest about all that is going on. Please know that there are so many people praying you through this – including me down the 405!! You are so very, very strong. How many treatments left in this phase?
After today, 7 more to go….