Thursday, February 8 – Neuropathy, Neuropathy, Neuropathy

I slept in this morning, woke just in time to call the Toothless Wonder Cat in for breakfast. I got his piece of ham ready, which is what we start with, and went to the backyard. He was not there, so I went to the side door to call him from there. No answer, no orange fluff ball coming up the driveway. The neighbor across the street arrived home from dropping his son at school and told me the Fluff Ball had eaten breakfast at his house and he didn’t know where he was. After we chatted a bit, I came back into the house and put the ham away. I was tired already and a bit cold from the stint outside.

I relaxed on the sofa getting warm again and regaining my strength to get ready to head to acupuncture. I got ready just in time for us to leave for my appointment. I talked with Homa about the neuropathy and how I’ve had no break this week like I did last week. The neuropathy lessened this week, but never went away like it did the week before. Today I can feel it starting to get worse again, with pain starting to show up in my nail beds. Same with my feet, I feel it even when I am not standing on them.

Homa does what she can to help counteract the effects of chemo, but I know this is a losing battle until we stop the chemo. I really do hope yesterday was my last treatment. As much as it scares me to end chemo, I am ready to be done.
Once we returned home, I put some soup on for my lunch and Hubby and I decided to watch a movie on Netflix while we ate lunch. We chose Bright, modern age LA cop movie with Orks, Elves, Fairies and Humans. It was entertaining. After we were done, I called South Bay Surgeons to find out from Michelle what’s going on with scheduling my surgeries since I have not heard back from her yet.

I finally got through to Michelle and she said she had a call into Dr. Goldberg’s office to coordinate what dates are available for surgery. We also talked about how I don’t have my last chemo date yet, it could be yesterday or it could be February 21st, I will not find out until Monday. She asked me to call her back on Monday when I know for sure my last chemo date.

The neuropathy has continued to feel a little worse this afternoon. Hubby asked me if Dr. Sikaria suggests I should continue with the last two cycles of chemo how would I feel about that. I’ve been thinking about that all day. I really hope she will decide to end the chemo with the cycle we did yesterday, but if she really thinks I complete all 12 cycles, then I will do this. I know I am tired and puffy and the neuropathy is slowly getting worse, but I want the cancer gone more than I want to end this now. One of the women who visited on reunion night at Support Group told me she had neuropathy too during her treatment. Hers got much worse than mine is now and hers cleared up in about 6 months. She still gets it in two of her toes on her right foot occasionally. She says it’s only a few times a year at most and just a little numbness and sometimes tingling, but it goes away quickly. Knowing that, if Dr. Sikaria asks me to go the last two weeks, I will.

Hubby just asked that I be truthful with Dr. Sikaria on Monday and explain all that I am feeling right now. I can do that. He doesn’t want me to sugar coat anything. He wants this to end too. I don’t blame him; he’s my chauffeur, my medicine reminder, my cheering section and personal comedian. He reminds me to take it slow when I get frustrated with my inability to do something, like stay awake. He is stuck with me 24/7 right now and I know this has to be hard on him being my caretaker, making sure I am not over taxing myself, making sure I am eating, drinking, taking all my meds, (I said that already), reminding me we will get through this. He’s had one day off when his best friend came into town for NAMM (National Association of Music Merchants), and Hubby went with him on the first day to help him review drum vendors. Daughter and Grandson came over that day and spent time with me which was nice as it was a little scary being home by myself for that long.

I am watching the Olympics, even though opening ceremonies are not until tomorrow, NBC is airing some of the team ice skating events and moguls tonight. I’ve always enjoyed the Olympics. Takes my mind off of my tired and neuropathy. The ice is unforgiving tonight, as I have watched many of the male skaters fall that normally stick their landings. Hubby and I both noted the ice seems soft and the blades are sticking/digging in instead of sliding when the skaters are landing. Not one skater they have interviewed has said anything about it though.

Life is thinking beyond the neuropathy

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