Well that was a total let down. I was all ready for the start of the Second Cycle today.
Diuretic taken – check
Eat requisite banana – check
Bag packed – check
iPad charged, ready for streaming – check
Temp tattoo for amusement – check (can anyone tell me what it is?)
Cookies for the infusion team – check
We arrive at the office right on time, and I really need to use the restroom. Thank you diuretic. We wait, and wait, finally I am called back, and hubby too…. wait, what?
I excuse myself to use the facilities. In the meantime, Beth one of the infusion nurses is telling hubby why I can’t have treatment today….
Evidently my liver enzymes have tripled from my baseline lab work. I’m asked if I have been taking Tylenol – not since the first week to insure control of any bone pain from the Neulasta. Ok, we know we told you not to take Advil, use this instead. Your platlette counts are really good. Very strong. No more Tylenol.
Any alcohol? Hubby looks at me, “how much have you been drinking?” OMG, really? You are home with me daily, you see what I eat and drink… lets see, the Sunday before Friday AM labs I had 1/2 a beer. Next alcohol I had was the glass of red wine at Friday nights dinner out… then the bubbly this weekend to celebrate Blink being smaller.
Beth agrees it’s probably not the alcohol impacting my liver. What about herbal tea? Well, my favorite is the Tao of Teas Mediterranian Mint. Could be the herbal tea, when did you have that last? Thursday morning. Ok, now I’m thinking no more herb tea and no more wine or beer. Taken back to scheduling to reschedule the next 3 cycles, and to get a new standing order for labs as Beth is afraid they will not honor the current one if I go in sooner than two weeks.
Lizzy sets up Cycle 2 to be next Tuesday – Halloween, and reschedules Cycles 3 and 4 to be in the two week increments after that. She prints out our new schedule for us and away we go.
I am trying very hard to look at the bright side of this delay. No chemo right before Thanksgiving, and I get another good week. We can go to Disneyland again before the next treatement… but my heart and my left brain cell are at odds with the bright side. They want to yell, scream, rant, rave, throw a massive 2 year old that has been overstimulated tantrum. How the hell does my body rebel against the chemo so badly that after 1 cycle I’m already having bad blood work? Fuck my life.
I forgot to leave the cookies…
We stop at Trader Joes to pick up the few items I needed there and head home. Make reservations at Carnation Cafe again for Sunday since it’s going to be a “good” week. Notify all those that have asked about today’s treatment and the kids. Put everthing away… And as I am all set up on the sofa to check my email again, the house phone rings. It’s usually a telemarketer so I don’t jump up to grab it. Beep, the answering machine kicks in and it’s Beth from Dr. Sikaria’s office. She wants me to call her, talked to Dr. Sikaria… I jump up and race the machine to get to Beth before she hangs up. Too late.
Getting ready to call her back when my cell phone rings. Race back to the sofa, it’s Dr. Sikaria’s office, must be Beth. Hang up the land line and answer my cell. Yup, it’s Beth. Dr. Sikara wants me to get new labs late Wednesday or early Thursday, and as long as my liver panel is trending down, she wants me in for treatment Friday morning at 9:30 AM.
Friday it is. What this does to the remaining schedule, I have no clue. Guess we find that out Friday morning. Please, please, please let my liver enzymes be coming down!
Life is all about the CBC and CMP.
What a bummer to be all geared up and told ‘not today’. So sorry. =(